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Cancer Resource Directory

Positive, Encouraging Websites to subscribe to or follow on Facebook - "Watch. Be Inspired. Act." A collection of inspiring videos accompanied by simple actions that we all can do. - "Telling stories that make the world a better place." - No matter your background or life challenges, Purpose Fairy has something to brighten up your day. - "A global movement of kindness."

Indicates personal experience - Camp Keepsake is a cost free weekend in the beautiful Ojai Valley for those with cancer and up to five of their family and/or friends. - CFR retreats focus on improving quality of life for women with breast cancer through the therapeutic sport of fly fishing. Held throughout the nation, including Lake Arrowhead. - Provides the opportunity of a full day of, pampering at a local spa/salon for women facing cancer. - Grants live concert music wishes to people living with life threatening illnesses. "Bringing Hope and Joy Through The Power Of Music." - First Descents provides life-changing outdoor adventures for young adults (18-39) impacted by cancer. - Replenish your spirit and refresh your mind during a weekend retreat held at Irvine Ranch Outdoor Education Center in Orange. (Fees charged, but financial assistance available) - Little Pink Houses of Hope provides free week long vacations for breast cancer patients and their families in various cities and states, including Lake Tahoe, CA. - The Foundation For Living Beauty - A non-profit organization that conducts free fly fishing retreats for men living with all forms of cancer. - By using donated timeshare weeks and frequents flyer miles, Send Me On Vacation is able to provide week long vacations to breast cancer survivors.

Compassion Partners provides admission to Disney theme parks, Sea World, Universal Studios Orlando. Passes are also provided for family members. (407) 396-5320

Co-Pay Assistance/Financial Resources - Provides limited financial assistance such as treatment related transportation, child care, and home care. - Dedicated to helping patients afford copayments for chemotherapy and targeted treatment drugs. - Patient Advocate Foundation Co-Pay Relief provides direct financial assistance to qualified patients assisting with prescription drug co-payments. - Patient Access Network helps underinsured patients afford high deductibles and co-pays. - RXHope is a clearinghouse to help patients access financial assistance from pharmaceutical companies for brand name drugs. - Offers help with both health insurance premiums and drug co-payments for patients diagnosed with a variety of diseases (including breast cancer, melanoma, non-small cell lung cancer)

Clinical Trials - Alerts users to newly listed trials that match their particular medical situation. Also offers a metastatic breast cancer trial search. - Patients input health information and receive emails detailing research papers, clinical trials, guidelines, and warnings that are appropriate for their personal situation.

Legal Assistance - A joint program of Loyola Law School and the Disability Rights Legal Center, Cancer Legal Resource Center provides free and confidential information and resources on cancer related legal issues such as employment, medical leave, estate planning, reasonable accommodations, etc. - Provides assistance to patients regarding job retention, insurance, case management, etc.

Metastatic Breast Cancer Organizations - An online discussion board with searchable archives where those living with MBC can share and learn from others. - Provides virtual support groups for many various diseases. After signing up, users receive daily emails showing posts and then can click on and read any that interest them. There is also a Facebook group where members can post. (I belong to Advanced Breast Cancer Support Community) - Living Beyond Breast Cancer provides programs and services to help those who have been impacted by breast cancer. They offer several conferences each year, including one dedicated to MBC, and provide scholarships to participants to cover transportation and hotel costs. Online resources include twitter chats, webinars, and live web streams of panel discussions allowing audiences to text questions to the moderator. - Metastatic Breast Cancer Network is a national, independent, non-profit, all volunteer, patient-led advocacy organization dedicated to the unique concerns of women and men living with metastatic breast cancer. Like LBBC, they also offer yearly conferences and offer scholarships.

Support For Children - Camp Kesem is a nationwide community of student leaders providing a free camp experience to children who have/had a parent with cancer. In the So Cal area, camps are held in Big Bear (UCSD), Angeles Oaks (USC), and Angeles Crest (UCLA & UCI) - Provides a camp experience for children 7-1 3 who have a parent with cancer (this year August 20-23 in Big Bear). Other family events throughout the year include BBQs, San Diego Zoo, and a support group.

Miscellaneous Resources - Offers free professional housecleaning and maid services to women currently undergoing cancer treatment. Patients can receive one cleaning a month for up to four months. - A network of photographers who offer free portrait sessions for families dealing with cancer. - Provides free, on-location photography sessions for families who are dealing with serious illness. - Wally's Smile wants to provide comfort and a smile through the delivery of free care packages to cancer patients (They even have doggie care packages available to send to your best dog friend who is battling cancer!) - A cancer survivor designs the cards she wishes she'd received from friends and family. Called Empathy Cards, Emily believes they are "better, more authentic ways to communicate about sickness and suffering".